People living with KLS may not experience symptoms every day. In fact, affected individuals typically don’t have any symptoms between episodes. When symptoms do appear, they can last a few days, weeks, or even months.
Common symptoms include extreme sleepiness. There may be a strong desire to go to bed and trouble getting up in the morning.
During an episode, it’s not uncommon to sleep up to 20 hours a day. People living with KLS may get up to use the bathroom and eat, then go back to sleep.
Fatigue can be so severe that people with KLS are bedridden until an episode passes. This takes time and energy away from family, friends, and personal obligations.
Episodes can also trigger other symptoms, such as:
- childish behavior
- increased appetite
- excessive sex drive
This may result from reduced blood flow to parts of the brain during an episode.
KLS is an unpredictable condition. Episodes can recur suddenly and without warning weeks, months, or years later.
Most people resume normal activity after an episode without any behavioral or physical dysfunction. However, they may have little memory of what happened during their episode.